This is the kind of stuff at MUSC that I when we started talking about the possibility of going home I was concerned about. Josiah has never had even a week straight of good days. This is him, he is complicated. My concern has been are we being realistic to think he is going to be able to stay out of the hospital for any extend period of time. I know that eventually the answer will be yes, but right now the answer might just be no. And none of us have any inclination as to when that time might come. We got out of MUSC because he had 3 good days in a row. We came home and had one great day, then one AWFUL night, then 2 good days, then one bad day that has landed us back in the hospital. Obviously our hope is that the bad days begin getting fewer and farther between.
Please pray specifically that God would make it evident to Milo and I when we need to get back to MUSC. Pray for our girls that they would be comforted by God when we are not with them and while their routine is so uncertain. Pray that God would continue to heal Josiah and specifically for his heart cath that is coming up in 2 weeks. We are praying for the pressures in his lungs to be right so that Josiah can have his next open heart surgery.
- A heart that hold's on