Josiah's not playing in the Super Bowl.

Posted by Erin Wilson On Sunday, October 18, 2009 2 comments
Josiah has had an uneventful day. He's been very content. He's back down on the vent settings he was before he was extubated and doing CPAP trials again. The MD's are trying to feed Josiah's belly again today. He has always been fed TP, which means a tube down his nose running through his belly and into his small intestine. So his milk by-passes his belly altogether. They have done this because so many heart babies don't tolerate feeds in their belly and the more important things for Josiah was to keep all his calories and grow. By putting the tube all the way down into his small intestine he rarely throws up and so doesn't waste his calories. But now is the time to try and feed his belly. So we are starting very slowly. We expect a transition time where he will be uncomfortable and throw up often. So pray for a quick transition time. Once Josiah is able to tolerate his feeds in his belly he will have a G-tube put in. This is a surgical procedure where a tube is put directly into his belly with a port sticking out of his side so he can be feed by a feeding pump that way. This will eliminate the need for the tube going in through his nose down to his belly. I think it is safe to say that my hopes of breast feeding this precious baby are gone. I held out hope for a long time that we might be able to accomplish this but I think I now have a much greater understanding of what it means for Josiah to be a single ventricle baby. It means he just will not have then energy for things that a normal 2 ventricle baby does. Milo and I have always thought that meant that Josiah wouldn't be a football player and he won't be, but right now sucking, swallowing, and breathing is a like the Super Bowl and Josiah just can't play. So we make it easier for Josiah with a G-tube, there is no energy exerted when feeding through a G-tube except digestion, and Josiah gets to stay focused on growing and healing.

-A Heart that Holds On

2 comments to Josiah's not playing in the Super Bowl.

  1. says:

    Anonymous Praying for your precious baby boy. Praying for your family.

  1. says:

    Anonymous We continue to pray. Look for an email from a co-worker who might know someone with similar situations here in Greenville. We love you all!

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