here's our beautiful boy!! he's doing great!

"For God did not give us the spirit of fear, but of power and of love and of a sound mind." 2 Timothy 1:7

Milo and I took the girls to church this morning her in Charleston. I sobbed through the first set of songs ( I'm just an emotional wreck these days) both of which had to do with being alive because of Jesus. Then the pastor began his sermon in which the scripture above was the first scripture he spoke about. This was a scripture I needed badly. I have been so fearful of getting to excited about Josiah's amazing progress this week because I know things can change in an instant around here. It's been a tough week. We have had the most amazing successes with Josiah this week but I'm so fearful to feel what I felt like on Monday night again so I have not aloud myself to be too joyful and excited over him. What I realized today was that in doing that, in letting fear take hold of me, I missed out on the most amazing miracle. God has brought us through Josiah's surgery incredibly and has given him a recovery that has amazed even the doctors. So I'm not missing out on it anymore. God has been great to us and I need to allow myself to rejoice in this huge miracle. God did not give me a spirit of fear but one of power.

Here are the great things Josiah has accomplished today. He has weaned all the way down on the vent to the lowest they go. Because of that they did their first CPap trial on him tonight. That's where they pretty much shut of the vent and allow him to practice breathing on his own. They do it for 30 minutes and Josiah just slept right through it. He never missed a breath! That's amazing! They may even take out his breathing tube tomorrow or the next day! Wow! Also, we showed up today and they were feeding him breast milk! Wow again! We were not expecting that at all and he has tolerated it very well. This is all great news and means Josiah is progressing great! God has been so good to us this week and always!

So Milo and I have done it again. We've picked a name for our child not realizing we pronounce it differently. Those of you who remember when Daylia was born Milo and I were not on the same page as to the pronunciation of her name. It took several good friends to point it out and we were finally able to come to an agreement on it.

So here we are in the same conundrum again. This time neither of us are budging so we have agreed to leave it to the masses. Whatever you say, that is what we will go with. It's like Fox news "we report you decide."

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How do you pronounce Josiah?

JoSiah with a "s" sound JoZiah with a "z" sound

Josiah continues to improve. The doctors are very happy with his progress. They can see his stats improving, and we can see his physical appearance improving. It is great to watch.

We got a new neighbor in the bed beside us today. She is Addi Moore, and she is a pretty famous patient around here. The Moore's were here over 100 days this winter, but now Addi has returned for her 2nd HLHS surgery, the Glenn, which she had today. I assume she is doing well, and we look foward to getting to know Adam and Jen better over the next few days.

We don't expect to see any major changes with Josiah over the next 7 days as we continue to watch them wean him fromm the ventilator. He was on 11 IV drips tonight when we saw him. I hope that number continues to decrease over the next few days as well.

Thats all for now!

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Josiah did great through his chest closing procedure. It is amazing that they do it right there at his bed. It is also amazing to see his beautiful eyes again. Last time we saw them I was afraid I wouldn't see them again. I can't thank God enough for seeing us through this major hurdle. Kissed my sweet boy goodnight and was able to leave tonight with a smile on my face.

Josiah has been stitched back up nd his chest is no longer open. He is still kinda puffy, but really looks a thousand times better. He still has 3 tubes coming out of his abdomen area which are draining some of the "extra" fluid his body is carrying as a result of these surgeries. He is not out of the woods yet by any means, but Jposiah has made incredible strides over the last few days.

I want to personally thank those of you who have committed to pray for our little boy. thewilsonheart.com recieved thousands of hits on Tuesday with many of you praying around the clock and actively engaging in Josiah's story. We thank You! We love each of you!

If any of you were ever in doubt, we want you to know that we give God all the glory for the miracle we have seen firsthand. He is the great physician!

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Erin has maxed out her quota on breast milk at the hospital, so she has started storing in our freezer at the condo

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